Request for comments on client registry way forward document for Tanzania

Hello all

There is a task team working on a way forward for client registries in Tanzania, chaired jointly by Happy Mariki of MOH and Sri Perera of CDC (copied above), under the supervision of the enterprise architecture technical working group. A small working group has drafted the attached document. We are also planning on discussing it and working on it further with a wider group of stakeholders.

If anyone from this community would have time to submit comments or inputs on this they would be very welcome. This could come either in the form of particular comments written into MS word document, or overall comments in the text of an email. Am not sure if list owners want commentators to copy this list or not, but if anyone prefers to submit comments directly please send to the four email addresses (three email addresses copied above as well as mine).

Example questions - are there any key considerations we have left out, particularly in the governance/policy questions or in the key features of a client registry section? Are there particular international standards or international best practices we could mention specifically?

Thank you in advance for your time.

Best wishes

Elaine

CD-RecommendationsforHSWClientIdentificationV0.1.docx.docx (83.5 KB)

Hi Elaine

Thanks for posting this and calling out to Shaun to help bring in the Client Registry community too. I’d be excited to see comments coming in on the list (a way for others to grow too). A few questions that weren’t immediately clear to myself:

1 - under governance and policy it would be good to explore who carries the responsibility for curating the CR / MPI information.

2 - are there any regulatory or policy considerations around privacy that Tanzania has that one should be considering? I.e. in RSA we have Protection of Personal Information (POPI) Act and (paraphrasing) a person must be able to ask an institution what data they have about them and be able to have that data given to the requesting person. Are there privacy or constitutional concerns around how personal data is managed in Tz?

Cheers

···

On Wed, Sep 7, 2016 at 12:32 PM, Elaine Baker elaine.baker.work@gmail.com wrote:

Hello all

There is a task team working on a way forward for client registries in Tanzania, chaired jointly by Happy Mariki of MOH and Sri Perera of CDC (copied above), under the supervision of the enterprise architecture technical working group. A small working group has drafted the attached document. We are also planning on discussing it and working on it further with a wider group of stakeholders.

If anyone from this community would have time to submit comments or inputs on this they would be very welcome. This could come either in the form of particular comments written into MS word document, or overall comments in the text of an email. Am not sure if list owners want commentators to copy this list or not, but if anyone prefers to submit comments directly please send to the four email addresses (three email addresses copied above as well as mine).

Example questions - are there any key considerations we have left out, particularly in the governance/policy questions or in the key features of a client registry section? Are there particular international standards or international best practices we could mention specifically?

Thank you in advance for your time.

Best wishes

Elaine

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Regards
Carl Fourie

Senior Program Manager | Digital Health Division

Jembi Health Systems | SOUTH AFRICA
Mobile: +27 71 540 4477 | Office: +27 21 701 0939 | Skype: carl.fourie17
E-mail: carl.fourie@jembi.org

Email Disclaimer:

This e-mail contains proprietary and confidential information some or all of which may be legally privileged. It is for the intended recipient only. If an addressing or transmission error has misdirected this e-mail, please notify the author by replying to this e-mail and then deleting same. If you are not the intended recipient you must not use, disclose, distribute, copy, print or rely on this e-mail. Jembi Health Systems NPO, its subsidiaries and associated companies is not liable for the security of information sent by e-mail and accepts no liability of whatsoever nature for any loss, damage or expense resulting, directly or indirectly, from the access of this e-mail or any attachments hereto.

Thanks for sharing Elaine.

We’ll plan to review over the next few days. Sounds like you all are making great progress!

Shaun

···

On Wed, Sep 7, 2016 at 6:32 AM, Elaine Baker elaine.baker.work@gmail.com wrote:

Hello all

There is a task team working on a way forward for client registries in Tanzania, chaired jointly by Happy Mariki of MOH and Sri Perera of CDC (copied above), under the supervision of the enterprise architecture technical working group. A small working group has drafted the attached document. We are also planning on discussing it and working on it further with a wider group of stakeholders.

If anyone from this community would have time to submit comments or inputs on this they would be very welcome. This could come either in the form of particular comments written into MS word document, or overall comments in the text of an email. Am not sure if list owners want commentators to copy this list or not, but if anyone prefers to submit comments directly please send to the four email addresses (three email addresses copied above as well as mine).

Example questions - are there any key considerations we have left out, particularly in the governance/policy questions or in the key features of a client registry section? Are there particular international standards or international best practices we could mention specifically?

Thank you in advance for your time.

Best wishes

Elaine

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Shaun J. Grannis, MD MS FACMI FAAFP
Biomedical Research Scientist, The Regenstrief Institute
Associate Professor, I.U. School of Medicine
410 West 10th Street, Suite 2000
Indianapolis, IN 46202
(317) 274-9092 (Office)
(317) 274-9305 (Fax)

Thanks Carl and Shawn,

Under 1, we do not have the answer yet. The concept note has a health sector client registry that can link to the National ID data systems as defined with specific
Use Cases. eGA is leading the way on laws/policy reform as it relates to e-anything. The MOH HMIS is also looking at data policy (which would include data sharing/use) – but am not sure how far along this is.

There is a lot of discussion ongoing about how personal information is managed, and many different stakeholders involved.

I copied Mturi on this email, as he may know the status of some of the proposed new eGA laws that should address some of these areas, as he is co-leading the
EA work in Tanzania.

Niamh

···

Hi Elaine

Thanks for posting this and calling out to Shaun to help bring in the Client Registry community too. I’d be excited to see comments coming in on the list (a way
for others to grow too). A few questions that weren’t immediately clear to myself:

1 - under governance and policy it would be good to explore who carries the responsibility for curating the CR / MPI information.

2 - are there any regulatory or policy considerations around privacy that Tanzania has that one should be considering? I.e. in RSA we have Protection of Personal
Information (POPI) Act and (paraphrasing) a person must be able to ask an institution what data they have about them and be able to have that data given to the requesting person. Are there privacy or constitutional concerns around how personal data is managed
in Tz?

Cheers

Regards
Carl Fourie

Senior Program Manager | Digital Health Division

Jembi Health Systems | SOUTH AFRICA
Mobile: +27 71 540 4477 | Office: +27 21 701 0939 | Skype: carl.fourie17
E-mail: carl.fourie@jembi.org

Email Disclaimer:

  • This e-mail contains proprietary and confidential information some or all of which may be legally privileged. It is for the intended recipient only. If an addressing or transmission error has misdirected
    this e-mail, please notify the author by replying to this e-mail and then deleting same. If you are not the intended recipient you must not use, disclose, distribute, copy, print or rely on this e-mail. Jembi Health Systems NPO, its subsidiaries and associated
    companies is not liable for the security of information sent by e-mail and accepts no liability of whatsoever nature for any loss, damage or expense resulting, directly or indirectly, from the access of this e-mail or any attachments hereto.*

On Wed, Sep 7, 2016 at 12:32 PM, Elaine Baker elaine.baker.work@gmail.com wrote:

Hello all

There is a task team working on a way forward for client registries in Tanzania, chaired jointly by Happy Mariki of MOH and Sri Perera of CDC (copied above), under the supervision of the enterprise architecture technical working group.
A small working group has drafted the attached document. We are also planning on discussing it and working on it further with a wider group of stakeholders.

If anyone from this community would have time to submit comments or inputs on this they would be very welcome. This could come either in the form of particular comments written into MS word document, or overall comments in the text of
an email. Am not sure if list owners want commentators to copy this list or not, but if anyone prefers to submit comments directly please send to the four email addresses (three email addresses copied above as well as mine).

Example questions - are there any key considerations we have left out, particularly in the governance/policy questions or in the key features of a client registry section? Are there particular international standards or international best
practices we could mention specifically?

Thank you in advance for your time.

Best wishes

Elaine

You received this message because you are subscribed to the Google Groups “OpenHIE Implementers Network (OHIN)” group.

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ohie-implementers@googlegroups.com.

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https://groups.google.com/d/msgid/ohie-implementers/014c6347-aa45-48c2-a1bc-c1ac84f8a3e3%40googlegroups.com
.

For more options, visit
https://groups.google.com/d/optout
.

Hi all.

UNICEF sponsored a set of 3 videos re: unique IDs for health, with a focus (as one might expect) on use cases specific to children. The 3rd of these videos goes into some detail about how CRs may be leveraged; it may be found here: https://vimeo.com/152392600. If folks are interested, the preceding videos 1 and 2 can be found here and here, respectively: https://vimeo.com/151342311, https://vimeo.com/156650602).

There are good reasons to want to have a health CR separate from the national ID database that may be managed by the ministry of the interior. One reason is that it can take a decade or more to achieve the inter-ministerial consensus needed for a single, all-government ID number to be operationalized. Rolling out a dedicated ID purely for health purposes is much simpler from a governance standpoint – and often much quicker to implement. As an additional motivation, for many of our most vulnerable populations, it will impede their care-seeking behaviour if they have to present their national ID number to get care. As Carl has mentioned – the unique privacy and confidentiality policies that apply to health data can encourage this care-seeking behaviour where a health-only ID is used. (This particular issue is discussed in video #2, above).

I hope this info might be helpful.

Warmest regards,

Derek.

PS: apologies… these videos will soon be posted up the AeHIN site, but they aren’t there, yet.

Derek Ritz, P.Eng., CPHIMS-CA

ecGroup Inc.

+1 (905) 515-0045

This communication is intended only for the party to whom it is addressed, and may contain information which is privileged or confidential. Any other delivery, distribution, copying or disclosure is strictly prohibited and is not a waiver of privilege or confidentiality.

···

From: ohie-implementers@googlegroups.com [mailto:ohie-implementers@googlegroups.com] On Behalf Of Darcy, Niamh
Sent: Friday, September 9, 2016 12:03 AM
To: Carl Fourie; Elaine Baker
Cc: OpenHIE Implementers Network (OHIN); Happy Mariki Danford; Sriyanjit Perera; Shaun Grannis; Mturi Elias (emturi@gmail.com)
Subject: RE: [ohie-implementers] Request for comments on client registry way forward document for Tanzania

Thanks Carl and Shawn,

Under 1, we do not have the answer yet. The concept note has a health sector client registry that can link to the National ID data systems as defined with specific Use Cases. eGA is leading the way on laws/policy reform as it relates to e-anything. The MOH HMIS is also looking at data policy (which would include data sharing/use) – but am not sure how far along this is.

There is a lot of discussion ongoing about how personal information is managed, and many different stakeholders involved.

I copied Mturi on this email, as he may know the status of some of the proposed new eGA laws that should address some of these areas, as he is co-leading the EA work in Tanzania.

Niamh

From: Carl Fourie [mailto:carl@jembi.org]
Sent: Wednesday, September 07, 2016 7:43 AM
To: Elaine Baker elaine.baker.work@gmail.com
Cc: OpenHIE Implementers Network (OHIN) ohie-implementers@googlegroups.com; Happy Mariki Danford shose6@gmail.com; Sriyanjit Perera iix6@cdc.gov; Darcy, Niamh ndarcy@rti.org; Shaun Grannis sgrannis@regenstrief.org
Subject: Re: [ohie-implementers] Request for comments on client registry way forward document for Tanzania

Hi Elaine

Thanks for posting this and calling out to Shaun to help bring in the Client Registry community too. I’d be excited to see comments coming in on the list (a way for others to grow too). A few questions that weren’t immediately clear to myself:

1 - under governance and policy it would be good to explore who carries the responsibility for curating the CR / MPI information.

2 - are there any regulatory or policy considerations around privacy that Tanzania has that one should be considering? I.e. in RSA we have Protection of Personal Information (POPI) Act and (paraphrasing) a person must be able to ask an institution what data they have about them and be able to have that data given to the requesting person. Are there privacy or constitutional concerns around how personal data is managed in Tz?

Cheers

Regards
Carl Fourie

Senior Program Manager | Digital Health Division

Jembi Health Systems | SOUTH AFRICA
Mobile: +27 71 540 4477 | Office: +27 21 701 0939 | Skype: carl.fourie17
E-mail: carl.fourie@jembi.org

Email Disclaimer:

This e-mail contains proprietary and confidential information some or all of which may be legally privileged. It is for the intended recipient only. If an addressing or transmission error has misdirected this e-mail, please notify the author by replying to this e-mail and then deleting same. If you are not the intended recipient you must not use, disclose, distribute, copy, print or rely on this e-mail. Jembi Health Systems NPO, its subsidiaries and associated companies is not liable for the security of information sent by e-mail and accepts no liability of whatsoever nature for any loss, damage or expense resulting, directly or indirectly, from the access of this e-mail or any attachments hereto.

On Wed, Sep 7, 2016 at 12:32 PM, Elaine Baker elaine.baker.work@gmail.com wrote:

Hello all

There is a task team working on a way forward for client registries in Tanzania, chaired jointly by Happy Mariki of MOH and Sri Perera of CDC (copied above), under the supervision of the enterprise architecture technical working group. A small working group has drafted the attached document. We are also planning on discussing it and working on it further with a wider group of stakeholders.

If anyone from this community would have time to submit comments or inputs on this they would be very welcome. This could come either in the form of particular comments written into MS word document, or overall comments in the text of an email. Am not sure if list owners want commentators to copy this list or not, but if anyone prefers to submit comments directly please send to the four email addresses (three email addresses copied above as well as mine).

Example questions - are there any key considerations we have left out, particularly in the governance/policy questions or in the key features of a client registry section? Are there particular international standards or international best practices we could mention specifically?

Thank you in advance for your time.

Best wishes

Elaine


You received this message because you are subscribed to the Google Groups “OpenHIE Implementers Network (OHIN)” group.
To unsubscribe from this group and stop receiving emails from it, send an email to ohie-implementers+unsubscribe@googlegroups.com.
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To view this discussion on the web visit https://groups.google.com/d/msgid/ohie-implementers/014c6347-aa45-48c2-a1bc-c1ac84f8a3e3%40googlegroups.com.
For more options, visit https://groups.google.com/d/optout.


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For more options, visit https://groups.google.com/d/optout.

Derek:

Thanks for posting this information and for sharing these videos.

We have struggled with this same issue in Kenya since we did the first proof of concept for our version of CR here. The Kenya MOH is currently piloting the National Unique Patient Identification (NUPI) solution in a country in Western Kenya. The current NUPI is generally based on the OEC architecture of course with lots of improvement.

Whereas I agree with you about separating a health CR from a national ID database, there are however as expected lots of advantages to exploring how the health sector can best benefit from such a service without negatively affecting health seeking and/or delivery of quality healthcare services. I was deeply involved in exploring that in Kenya with the Ministry of Interior who built and manage the Integrated Population Registration Services (IPRS) which now integrates with the Civil Registration System. The lessons I think we can learn in Kenya is from experiences of IPRS providing identity services to multiple sectors; finance sector to the bank, revenue authority, consumer services e.g. MPESA, education sector to the Higher Education Loans Board, agriculture and lands sector in terms of property identify, deeds, etc, Revenue Authority, ports of entry, etc. How can the health sector too benefit? With strong measures around privacy and confidentiality, I believe the health sector can benefit immensely.

Thanks.

···

On Tue, Sep 13, 2016 at 6:23 PM, Derek Ritz (ecGroup) derek.ritz@ecgroupinc.com wrote:

Hi all.

UNICEF sponsored a set of 3 videos re: unique IDs for health, with a focus (as one might expect) on use cases specific to children. The 3rd of these videos goes into some detail about how CRs may be leveraged; it may be found here: https://vimeo.com/152392600. If folks are interested, the preceding videos 1 and 2 can be found here and here, respectively: https://vimeo.com/151342311, https://vimeo.com/156650602).

There are good reasons to want to have a health CR separate from the national ID database that may be managed by the ministry of the interior. One reason is that it can take a decade or more to achieve the inter-ministerial consensus needed for a single, all-government ID number to be operationalized. Rolling out a dedicated ID purely for health purposes is much simpler from a governance standpoint – and often much quicker to implement. As an additional motivation, for many of our most vulnerable populations, it will impede their care-seeking behaviour if they have to present their national ID number to get care. As Carl has mentioned – the unique privacy and confidentiality policies that apply to health data can encourage this care-seeking behaviour where a health-only ID is used. (This particular issue is discussed in video #2, above).

I hope this info might be helpful.

Warmest regards,

Derek.

PS: apologies… these videos will soon be posted up the AeHIN site, but they aren’t there, yet.

Derek Ritz, P.Eng., CPHIMS-CA

ecGroup Inc.

+1 (905) 515-0045

This communication is intended only for the party to whom it is addressed, and may contain information which is privileged or confidential. Any other delivery, distribution, copying or disclosure is strictly prohibited and is not a waiver of privilege or confidentiality.

From: ohie-implementers@googlegroups.com [mailto:ohie-implementers@googlegroups.com] On Behalf Of Darcy, Niamh
Sent: Friday, September 9, 2016 12:03 AM
To: Carl Fourie; Elaine Baker
Cc: OpenHIE Implementers Network (OHIN); Happy Mariki Danford; Sriyanjit Perera; Shaun Grannis; Mturi Elias (emturi@gmail.com)
Subject: RE: [ohie-implementers] Request for comments on client registry way forward document for Tanzania

Thanks Carl and Shawn,

Under 1, we do not have the answer yet. The concept note has a health sector client registry that can link to the National ID data systems as defined with specific Use Cases. eGA is leading the way on laws/policy reform as it relates to e-anything. The MOH HMIS is also looking at data policy (which would include data sharing/use) – but am not sure how far along this is.

There is a lot of discussion ongoing about how personal information is managed, and many different stakeholders involved.

I copied Mturi on this email, as he may know the status of some of the proposed new eGA laws that should address some of these areas, as he is co-leading the EA work in Tanzania.

Niamh

From: Carl Fourie [mailto:carl@jembi.org]
Sent: Wednesday, September 07, 2016 7:43 AM
To: Elaine Baker elaine.baker.work@gmail.com
Cc: OpenHIE Implementers Network (OHIN) ohie-implementers@googlegroups.com; Happy Mariki Danford shose6@gmail.com; Sriyanjit Perera iix6@cdc.gov; Darcy, Niamh ndarcy@rti.org; Shaun Grannis sgrannis@regenstrief.org
Subject: Re: [ohie-implementers] Request for comments on client registry way forward document for Tanzania

Hi Elaine

Thanks for posting this and calling out to Shaun to help bring in the Client Registry community too. I’d be excited to see comments coming in on the list (a way for others to grow too). A few questions that weren’t immediately clear to myself:

1 - under governance and policy it would be good to explore who carries the responsibility for curating the CR / MPI information.

2 - are there any regulatory or policy considerations around privacy that Tanzania has that one should be considering? I.e. in RSA we have Protection of Personal Information (POPI) Act and (paraphrasing) a person must be able to ask an institution what data they have about them and be able to have that data given to the requesting person. Are there privacy or constitutional concerns around how personal data is managed in Tz?

Cheers

Regards
Carl Fourie

Senior Program Manager | Digital Health Division

Jembi Health Systems | SOUTH AFRICA
Mobile: +27 71 540 4477 | Office: +27 21 701 0939 | Skype: carl.fourie17
E-mail: carl.fourie@jembi.org

Email Disclaimer:

This e-mail contains proprietary and confidential information some or all of which may be legally privileged. It is for the intended recipient only. If an addressing or transmission error has misdirected this e-mail, please notify the author by replying to this e-mail and then deleting same. If you are not the intended recipient you must not use, disclose, distribute, copy, print or rely on this e-mail. Jembi Health Systems NPO, its subsidiaries and associated companies is not liable for the security of information sent by e-mail and accepts no liability of whatsoever nature for any loss, damage or expense resulting, directly or indirectly, from the access of this e-mail or any attachments hereto.

On Wed, Sep 7, 2016 at 12:32 PM, Elaine Baker elaine.baker.work@gmail.com wrote:

Hello all

There is a task team working on a way forward for client registries in Tanzania, chaired jointly by Happy Mariki of MOH and Sri Perera of CDC (copied above), under the supervision of the enterprise architecture technical working group. A small working group has drafted the attached document. We are also planning on discussing it and working on it further with a wider group of stakeholders.

If anyone from this community would have time to submit comments or inputs on this they would be very welcome. This could come either in the form of particular comments written into MS word document, or overall comments in the text of an email. Am not sure if list owners want commentators to copy this list or not, but if anyone prefers to submit comments directly please send to the four email addresses (three email addresses copied above as well as mine).

Example questions - are there any key considerations we have left out, particularly in the governance/policy questions or in the key features of a client registry section? Are there particular international standards or international best practices we could mention specifically?

Thank you in advance for your time.

Best wishes

Elaine


You received this message because you are subscribed to the Google Groups “OpenHIE Implementers Network (OHIN)” group.
To unsubscribe from this group and stop receiving emails from it, send an email to ohie-implementers+unsubscribe@googlegroups.com.
To post to this group, send email to ohie-implementers@googlegroups.com.
To view this discussion on the web visit https://groups.google.com/d/msgid/ohie-implementers/014c6347-aa45-48c2-a1bc-c1ac84f8a3e3%40googlegroups.com.
For more options, visit https://groups.google.com/d/optout.


You received this message because you are subscribed to the Google Groups “OpenHIE Implementers Network (OHIN)” group.
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For more options, visit https://groups.google.com/d/optout.

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Regards,
~Steven Wanyee Macharia~

Thanks, Steve. I am very encouraged to hear about your positive experiences re: IPRS as an ID service for multiple use cases in Kenya. May I ask, are they yet using IPRS as a healthcare-focused CR? If yes – I hope you can share insights from this; I definitely want to learn more! :slight_smile:

I had an opportunity, a few months ago, to learn details about Thailand’s nation-wide, all-citizens ID system. Thailand is using this national ID system for health purposes, as well as for many of the use cases you list for IPRS. There are many aspects that are working wonderfully. Some of the challenges faced by the health system in Thailand, however, are related to (as you point out) issues of privacy and confidentiality. Some at-risk, and sometimes marginalized populations (e.g. MSM, FSW, intravenous drug users, etc.), are not care-seeking and there is some evidence that it is because they don’t want to reveal their national ID#. There have also been challenges related to non-citizen populations who should be receiving care/treatment are not identified for health purposes but are not because they are non-citizens and so ineligible for the national ID card. (NOTE: a separate/parallel scheme is attempting to provide ID services for these non-citizen populations).

I look forward to this ongoing conversation; it is an important topic. Unambiguously identifying our subjects of care is a foundational aspect for any health system.

Warmest regards,

Derek.

Derek Ritz, P.Eng., CPHIMS-CA

ecGroup Inc.

+1 (905) 515-0045

This communication is intended only for the party to whom it is addressed, and may contain information which is privileged or confidential. Any other delivery, distribution, copying or disclosure is strictly prohibited and is not a waiver of privilege or confidentiality.

···

From: Steven Wanyee [mailto:swanyee@gmail.com]
Sent: Wednesday, September 14, 2016 3:33 AM
To: Derek Ritz (ecGroup)
Cc: Darcy, Niamh; Carl Fourie; Elaine Baker; OpenHIE Implementers Network (OHIN); Happy Mariki Danford; Sriyanjit Perera; Shaun Grannis; Mturi Elias
Subject: Re: [ohie-implementers] Request for comments on client registry way forward document for Tanzania

Derek:

Thanks for posting this information and for sharing these videos.

We have struggled with this same issue in Kenya since we did the first proof of concept for our version of CR here. The Kenya MOH is currently piloting the National Unique Patient Identification (NUPI) solution in a country in Western Kenya. The current NUPI is generally based on the OEC architecture of course with lots of improvement.

Whereas I agree with you about separating a health CR from a national ID database, there are however as expected lots of advantages to exploring how the health sector can best benefit from such a service without negatively affecting health seeking and/or delivery of quality healthcare services. I was deeply involved in exploring that in Kenya with the Ministry of Interior who built and manage the Integrated Population Registration Services (IPRS) which now integrates with the Civil Registration System. The lessons I think we can learn in Kenya is from experiences of IPRS providing identity services to multiple sectors; finance sector to the bank, revenue authority, consumer services e.g. MPESA, education sector to the Higher Education Loans Board, agriculture and lands sector in terms of property identify, deeds, etc, Revenue Authority, ports of entry, etc. How can the health sector too benefit? With strong measures around privacy and confidentiality, I believe the health sector can benefit immensely.

Thanks.

On Tue, Sep 13, 2016 at 6:23 PM, Derek Ritz (ecGroup) derek.ritz@ecgroupinc.com wrote:

Hi all.

UNICEF sponsored a set of 3 videos re: unique IDs for health, with a focus (as one might expect) on use cases specific to children. The 3rd of these videos goes into some detail about how CRs may be leveraged; it may be found here: https://vimeo.com/152392600. If folks are interested, the preceding videos 1 and 2 can be found here and here, respectively: https://vimeo.com/151342311, https://vimeo.com/156650602).

There are good reasons to want to have a health CR separate from the national ID database that may be managed by the ministry of the interior. One reason is that it can take a decade or more to achieve the inter-ministerial consensus needed for a single, all-government ID number to be operationalized. Rolling out a dedicated ID purely for health purposes is much simpler from a governance standpoint – and often much quicker to implement. As an additional motivation, for many of our most vulnerable populations, it will impede their care-seeking behaviour if they have to present their national ID number to get care. As Carl has mentioned – the unique privacy and confidentiality policies that apply to health data can encourage this care-seeking behaviour where a health-only ID is used. (This particular issue is discussed in video #2, above).

I hope this info might be helpful.

Warmest regards,

Derek.

PS: apologies… these videos will soon be posted up the AeHIN site, but they aren’t there, yet.

Derek Ritz, P.Eng., CPHIMS-CA

ecGroup Inc.

+1 (905) 515-0045

This communication is intended only for the party to whom it is addressed, and may contain information which is privileged or confidential. Any other delivery, distribution, copying or disclosure is strictly prohibited and is not a waiver of privilege or confidentiality.

From: ohie-implementers@googlegroups.com [mailto:ohie-implementers@googlegroups.com] On Behalf Of Darcy, Niamh
Sent: Friday, September 9, 2016 12:03 AM
To: Carl Fourie; Elaine Baker
Cc: OpenHIE Implementers Network (OHIN); Happy Mariki Danford; Sriyanjit Perera; Shaun Grannis; Mturi Elias (emturi@gmail.com)
Subject: RE: [ohie-implementers] Request for comments on client registry way forward document for Tanzania

Thanks Carl and Shawn,

Under 1, we do not have the answer yet. The concept note has a health sector client registry that can link to the National ID data systems as defined with specific Use Cases. eGA is leading the way on laws/policy reform as it relates to e-anything. The MOH HMIS is also looking at data policy (which would include data sharing/use) – but am not sure how far along this is.

There is a lot of discussion ongoing about how personal information is managed, and many different stakeholders involved.

I copied Mturi on this email, as he may know the status of some of the proposed new eGA laws that should address some of these areas, as he is co-leading the EA work in Tanzania.

Niamh

From: Carl Fourie [mailto:carl@jembi.org]
Sent: Wednesday, September 07, 2016 7:43 AM
To: Elaine Baker elaine.baker.work@gmail.com
Cc: OpenHIE Implementers Network (OHIN) ohie-implementers@googlegroups.com; Happy Mariki Danford shose6@gmail.com; Sriyanjit Perera iix6@cdc.gov; Darcy, Niamh ndarcy@rti.org; Shaun Grannis sgrannis@regenstrief.org
Subject: Re: [ohie-implementers] Request for comments on client registry way forward document for Tanzania

Hi Elaine

Thanks for posting this and calling out to Shaun to help bring in the Client Registry community too. I’d be excited to see comments coming in on the list (a way for others to grow too). A few questions that weren’t immediately clear to myself:

1 - under governance and policy it would be good to explore who carries the responsibility for curating the CR / MPI information.

2 - are there any regulatory or policy considerations around privacy that Tanzania has that one should be considering? I.e. in RSA we have Protection of Personal Information (POPI) Act and (paraphrasing) a person must be able to ask an institution what data they have about them and be able to have that data given to the requesting person. Are there privacy or constitutional concerns around how personal data is managed in Tz?

Cheers

Regards
Carl Fourie

Senior Program Manager | Digital Health Division

Jembi Health Systems | SOUTH AFRICA
Mobile: +27 71 540 4477 | Office: +27 21 701 0939 | Skype: carl.fourie17
E-mail: carl.fourie@jembi.org

Email Disclaimer:

This e-mail contains proprietary and confidential information some or all of which may be legally privileged. It is for the intended recipient only. If an addressing or transmission error has misdirected this e-mail, please notify the author by replying to this e-mail and then deleting same. If you are not the intended recipient you must not use, disclose, distribute, copy, print or rely on this e-mail. Jembi Health Systems NPO, its subsidiaries and associated companies is not liable for the security of information sent by e-mail and accepts no liability of whatsoever nature for any loss, damage or expense resulting, directly or indirectly, from the access of this e-mail or any attachments hereto.

On Wed, Sep 7, 2016 at 12:32 PM, Elaine Baker elaine.baker.work@gmail.com wrote:

Hello all

There is a task team working on a way forward for client registries in Tanzania, chaired jointly by Happy Mariki of MOH and Sri Perera of CDC (copied above), under the supervision of the enterprise architecture technical working group. A small working group has drafted the attached document. We are also planning on discussing it and working on it further with a wider group of stakeholders.

If anyone from this community would have time to submit comments or inputs on this they would be very welcome. This could come either in the form of particular comments written into MS word document, or overall comments in the text of an email. Am not sure if list owners want commentators to copy this list or not, but if anyone prefers to submit comments directly please send to the four email addresses (three email addresses copied above as well as mine).

Example questions - are there any key considerations we have left out, particularly in the governance/policy questions or in the key features of a client registry section? Are there particular international standards or international best practices we could mention specifically?

Thank you in advance for your time.

Best wishes

Elaine


You received this message because you are subscribed to the Google Groups “OpenHIE Implementers Network (OHIN)” group.
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To post to this group, send email to ohie-implementers@googlegroups.com.

To view this discussion on the web visit https://groups.google.com/d/msgid/ohie-implementers/032101d20dd2%24d19d35c0%2474d7a140%24%40ecgroupinc.com.

For more options, visit https://groups.google.com/d/optout.

Regards,
~Steven Wanyee Macharia~

Derek:

“are they yet using IPRS as a healthcare-focused CR?” Not yet but in the current NUPI architecture, the MPI is designed to be complemented/replaced by the IPRS in future. As you mentioned, certain hurdles including typical government protocols must be followed and that takes time particularly because IPRS is managed by a separate ministry from the MOH and it was originally intended to support security related interests and thus the basic modelling was not necessarily amenable to health needs and concerns.

It would really be great to have available in an easy to find repo, use cases from around the world of how different countries have approached this, experiences, lessons to draw from, etc - maybe that exists somewhere or its all over the place…

Thanks.

···

On Wed, Sep 14, 2016 at 3:38 PM, Derek Ritz (ecGroup) derek.ritz@ecgroupinc.com wrote:

Thanks, Steve. I am very encouraged to hear about your positive experiences re: IPRS as an ID service for multiple use cases in Kenya. May I ask, are they yet using IPRS as a healthcare-focused CR? If yes – I hope you can share insights from this; I definitely want to learn more! :slight_smile:

I had an opportunity, a few months ago, to learn details about Thailand’s nation-wide, all-citizens ID system. Thailand is using this national ID system for health purposes, as well as for many of the use cases you list for IPRS. There are many aspects that are working wonderfully. Some of the challenges faced by the health system in Thailand, however, are related to (as you point out) issues of privacy and confidentiality. Some at-risk, and sometimes marginalized populations (e.g. MSM, FSW, intravenous drug users, etc.), are not care-seeking and there is some evidence that it is because they don’t want to reveal their national ID#. There have also been challenges related to non-citizen populations who should be receiving care/treatment are not identified for health purposes but are not because they are non-citizens and so ineligible for the national ID card. (NOTE: a separate/parallel scheme is attempting to provide ID services for these non-citizen populations).

I look forward to this ongoing conversation; it is an important topic. Unambiguously identifying our subjects of care is a foundational aspect for any health system.

Warmest regards,

Derek.

Derek Ritz, P.Eng., CPHIMS-CA

ecGroup Inc.

+1 (905) 515-0045

This communication is intended only for the party to whom it is addressed, and may contain information which is privileged or confidential. Any other delivery, distribution, copying or disclosure is strictly prohibited and is not a waiver of privilege or confidentiality.

From: Steven Wanyee [mailto:swanyee@gmail.com]
Sent: Wednesday, September 14, 2016 3:33 AM
To: Derek Ritz (ecGroup)
Cc: Darcy, Niamh; Carl Fourie; Elaine Baker; OpenHIE Implementers Network (OHIN); Happy Mariki Danford; Sriyanjit Perera; Shaun Grannis; Mturi Elias

Subject: Re: [ohie-implementers] Request for comments on client registry way forward document for Tanzania

Derek:

Thanks for posting this information and for sharing these videos.

We have struggled with this same issue in Kenya since we did the first proof of concept for our version of CR here. The Kenya MOH is currently piloting the National Unique Patient Identification (NUPI) solution in a country in Western Kenya. The current NUPI is generally based on the OEC architecture of course with lots of improvement.

Whereas I agree with you about separating a health CR from a national ID database, there are however as expected lots of advantages to exploring how the health sector can best benefit from such a service without negatively affecting health seeking and/or delivery of quality healthcare services. I was deeply involved in exploring that in Kenya with the Ministry of Interior who built and manage the Integrated Population Registration Services (IPRS) which now integrates with the Civil Registration System. The lessons I think we can learn in Kenya is from experiences of IPRS providing identity services to multiple sectors; finance sector to the bank, revenue authority, consumer services e.g. MPESA, education sector to the Higher Education Loans Board, agriculture and lands sector in terms of property identify, deeds, etc, Revenue Authority, ports of entry, etc. How can the health sector too benefit? With strong measures around privacy and confidentiality, I believe the health sector can benefit immensely.

Thanks.

On Tue, Sep 13, 2016 at 6:23 PM, Derek Ritz (ecGroup) derek.ritz@ecgroupinc.com wrote:

Hi all.

UNICEF sponsored a set of 3 videos re: unique IDs for health, with a focus (as one might expect) on use cases specific to children. The 3rd of these videos goes into some detail about how CRs may be leveraged; it may be found here: https://vimeo.com/152392600. If folks are interested, the preceding videos 1 and 2 can be found here and here, respectively: https://vimeo.com/151342311, https://vimeo.com/156650602).

There are good reasons to want to have a health CR separate from the national ID database that may be managed by the ministry of the interior. One reason is that it can take a decade or more to achieve the inter-ministerial consensus needed for a single, all-government ID number to be operationalized. Rolling out a dedicated ID purely for health purposes is much simpler from a governance standpoint – and often much quicker to implement. As an additional motivation, for many of our most vulnerable populations, it will impede their care-seeking behaviour if they have to present their national ID number to get care. As Carl has mentioned – the unique privacy and confidentiality policies that apply to health data can encourage this care-seeking behaviour where a health-only ID is used. (This particular issue is discussed in video #2, above).

I hope this info might be helpful.

Warmest regards,

Derek.

PS: apologies… these videos will soon be posted up the AeHIN site, but they aren’t there, yet.

Derek Ritz, P.Eng., CPHIMS-CA

ecGroup Inc.

+1 (905) 515-0045

This communication is intended only for the party to whom it is addressed, and may contain information which is privileged or confidential. Any other delivery, distribution, copying or disclosure is strictly prohibited and is not a waiver of privilege or confidentiality.

From: ohie-implementers@googlegroups.com [mailto:ohie-implementers@googlegroups.com] On Behalf Of Darcy, Niamh
Sent: Friday, September 9, 2016 12:03 AM
To: Carl Fourie; Elaine Baker
Cc: OpenHIE Implementers Network (OHIN); Happy Mariki Danford; Sriyanjit Perera; Shaun Grannis; Mturi Elias (emturi@gmail.com)
Subject: RE: [ohie-implementers] Request for comments on client registry way forward document for Tanzania

Thanks Carl and Shawn,

Under 1, we do not have the answer yet. The concept note has a health sector client registry that can link to the National ID data systems as defined with specific Use Cases. eGA is leading the way on laws/policy reform as it relates to e-anything. The MOH HMIS is also looking at data policy (which would include data sharing/use) – but am not sure how far along this is.

There is a lot of discussion ongoing about how personal information is managed, and many different stakeholders involved.

I copied Mturi on this email, as he may know the status of some of the proposed new eGA laws that should address some of these areas, as he is co-leading the EA work in Tanzania.

Niamh

From: Carl Fourie [mailto:carl@jembi.org]
Sent: Wednesday, September 07, 2016 7:43 AM
To: Elaine Baker elaine.baker.work@gmail.com
Cc: OpenHIE Implementers Network (OHIN) ohie-implementers@googlegroups.com; Happy Mariki Danford shose6@gmail.com; Sriyanjit Perera iix6@cdc.gov; Darcy, Niamh ndarcy@rti.org; Shaun Grannis sgrannis@regenstrief.org
Subject: Re: [ohie-implementers] Request for comments on client registry way forward document for Tanzania

Hi Elaine

Thanks for posting this and calling out to Shaun to help bring in the Client Registry community too. I’d be excited to see comments coming in on the list (a way for others to grow too). A few questions that weren’t immediately clear to myself:

1 - under governance and policy it would be good to explore who carries the responsibility for curating the CR / MPI information.

2 - are there any regulatory or policy considerations around privacy that Tanzania has that one should be considering? I.e. in RSA we have Protection of Personal Information (POPI) Act and (paraphrasing) a person must be able to ask an institution what data they have about them and be able to have that data given to the requesting person. Are there privacy or constitutional concerns around how personal data is managed in Tz?

Cheers

Regards
Carl Fourie

Senior Program Manager | Digital Health Division

Jembi Health Systems | SOUTH AFRICA
Mobile: +27 71 540 4477 | Office: +27 21 701 0939 | Skype: carl.fourie17
E-mail: carl.fourie@jembi.org

Email Disclaimer:

This e-mail contains proprietary and confidential information some or all of which may be legally privileged. It is for the intended recipient only. If an addressing or transmission error has misdirected this e-mail, please notify the author by replying to this e-mail and then deleting same. If you are not the intended recipient you must not use, disclose, distribute, copy, print or rely on this e-mail. Jembi Health Systems NPO, its subsidiaries and associated companies is not liable for the security of information sent by e-mail and accepts no liability of whatsoever nature for any loss, damage or expense resulting, directly or indirectly, from the access of this e-mail or any attachments hereto.

On Wed, Sep 7, 2016 at 12:32 PM, Elaine Baker elaine.baker.work@gmail.com wrote:

Hello all

There is a task team working on a way forward for client registries in Tanzania, chaired jointly by Happy Mariki of MOH and Sri Perera of CDC (copied above), under the supervision of the enterprise architecture technical working group. A small working group has drafted the attached document. We are also planning on discussing it and working on it further with a wider group of stakeholders.

If anyone from this community would have time to submit comments or inputs on this they would be very welcome. This could come either in the form of particular comments written into MS word document, or overall comments in the text of an email. Am not sure if list owners want commentators to copy this list or not, but if anyone prefers to submit comments directly please send to the four email addresses (three email addresses copied above as well as mine).

Example questions - are there any key considerations we have left out, particularly in the governance/policy questions or in the key features of a client registry section? Are there particular international standards or international best practices we could mention specifically?

Thank you in advance for your time.

Best wishes

Elaine


You received this message because you are subscribed to the Google Groups “OpenHIE Implementers Network (OHIN)” group.
To unsubscribe from this group and stop receiving emails from it, send an email to ohie-implementers+unsubscribe@googlegroups.com.
To post to this group, send email to ohie-implementers@googlegroups.com.
To view this discussion on the web visit https://groups.google.com/d/msgid/ohie-implementers/014c6347-aa45-48c2-a1bc-c1ac84f8a3e3%40googlegroups.com.
For more options, visit https://groups.google.com/d/optout.


You received this message because you are subscribed to the Google Groups “OpenHIE Implementers Network (OHIN)” group.
To unsubscribe from this group and stop receiving emails from it, send an email to ohie-implementers+unsubscribe@googlegroups.com.
To post to this group, send email to ohie-implementers@googlegroups.com.
To view this discussion on the web visit https://groups.google.com/d/msgid/ohie-implementers/BLUPR0701MB19058FBB1ECE8758E39DE192C2FB0%40BLUPR0701MB1905.namprd07.prod.outlook.com.
For more options, visit https://groups.google.com/d/optout.


You received this message because you are subscribed to the Google Groups “OpenHIE Implementers Network (OHIN)” group.
To unsubscribe from this group and stop receiving emails from it, send an email to ohie-implementers+unsubscribe@googlegroups.com.
To post to this group, send email to ohie-implementers@googlegroups.com.

To view this discussion on the web visit https://groups.google.com/d/msgid/ohie-implementers/032101d20dd2%24d19d35c0%2474d7a140%24%40ecgroupinc.com.

For more options, visit https://groups.google.com/d/optout.

Regards,
~Steven Wanyee Macharia~

Regards,
~Steven Wanyee Macharia~

Thanks all for this useful discussion. Thanks also to Derek for the very useful and clear video - I think this video is a great tool for explaining and understanding client registries. The “way forward” document is proposing a client registry for the health and social services sector which is separate to (but can be linked to) the legal identification systems in Tanzania. The rationale for including social services is that the types of services provided by health and by social services are similar and very interlinked. The rationale for keeping the client registry separate from legal identification systems is also outlined in the document:

“Client identification in the health and social services
sector is not the same as legal identification.
Not every person who receives health and social services has legal
identification, due to the fact that legal identification systems are not yet
universal among the general population, due to the fact that some groups are
not often legally identified (eg refugees) and also due to the fact that the
health and social services system often sees an infant before the infant is
registered legally. In addition some
groups may not wish their legal identification to be linked with
their health/social services identification, but the health and social services
sector still needs to serve them both for their own benefit and for the benefit
of the general population.”

The health and social services client registry can be used as a source of information for legal identification systems (based on consent) for example notifications of births to the legal systems, and also national IDs (when presented) are a great tool for de-duplication and matching in the client registry.

Of course this is still a very preliminary draft document which needs to be discussed with a wider range of stakeholders in Tanzania before the way forward becomes clearer. It is good to get the international perspectives on these issues.

Best wishes

Elaine

···

On 14 September 2016 at 20:20, Steven Wanyee swanyee@gmail.com wrote:

Derek:

“are they yet using IPRS as a healthcare-focused CR?” Not yet but in the current NUPI architecture, the MPI is designed to be complemented/replaced by the IPRS in future. As you mentioned, certain hurdles including typical government protocols must be followed and that takes time particularly because IPRS is managed by a separate ministry from the MOH and it was originally intended to support security related interests and thus the basic modelling was not necessarily amenable to health needs and concerns.

It would really be great to have available in an easy to find repo, use cases from around the world of how different countries have approached this, experiences, lessons to draw from, etc - maybe that exists somewhere or its all over the place…

Thanks.

On Wed, Sep 14, 2016 at 3:38 PM, Derek Ritz (ecGroup) derek.ritz@ecgroupinc.com wrote:

Thanks, Steve. I am very encouraged to hear about your positive experiences re: IPRS as an ID service for multiple use cases in Kenya. May I ask, are they yet using IPRS as a healthcare-focused CR? If yes – I hope you can share insights from this; I definitely want to learn more! :slight_smile:

I had an opportunity, a few months ago, to learn details about Thailand’s nation-wide, all-citizens ID system. Thailand is using this national ID system for health purposes, as well as for many of the use cases you list for IPRS. There are many aspects that are working wonderfully. Some of the challenges faced by the health system in Thailand, however, are related to (as you point out) issues of privacy and confidentiality. Some at-risk, and sometimes marginalized populations (e.g. MSM, FSW, intravenous drug users, etc.), are not care-seeking and there is some evidence that it is because they don’t want to reveal their national ID#. There have also been challenges related to non-citizen populations who should be receiving care/treatment are not identified for health purposes but are not because they are non-citizens and so ineligible for the national ID card. (NOTE: a separate/parallel scheme is attempting to provide ID services for these non-citizen populations).

I look forward to this ongoing conversation; it is an important topic. Unambiguously identifying our subjects of care is a foundational aspect for any health system.

Warmest regards,

Derek.

Derek Ritz, P.Eng., CPHIMS-CA

ecGroup Inc.

+1 (905) 515-0045

This communication is intended only for the party to whom it is addressed, and may contain information which is privileged or confidential. Any other delivery, distribution, copying or disclosure is strictly prohibited and is not a waiver of privilege or confidentiality.

From: Steven Wanyee [mailto:swanyee@gmail.com]
Sent: Wednesday, September 14, 2016 3:33 AM
To: Derek Ritz (ecGroup)
Cc: Darcy, Niamh; Carl Fourie; Elaine Baker; OpenHIE Implementers Network (OHIN); Happy Mariki Danford; Sriyanjit Perera; Shaun Grannis; Mturi Elias

Subject: Re: [ohie-implementers] Request for comments on client registry way forward document for Tanzania

Derek:

Thanks for posting this information and for sharing these videos.

We have struggled with this same issue in Kenya since we did the first proof of concept for our version of CR here. The Kenya MOH is currently piloting the National Unique Patient Identification (NUPI) solution in a country in Western Kenya. The current NUPI is generally based on the OEC architecture of course with lots of improvement.

Whereas I agree with you about separating a health CR from a national ID database, there are however as expected lots of advantages to exploring how the health sector can best benefit from such a service without negatively affecting health seeking and/or delivery of quality healthcare services. I was deeply involved in exploring that in Kenya with the Ministry of Interior who built and manage the Integrated Population Registration Services (IPRS) which now integrates with the Civil Registration System. The lessons I think we can learn in Kenya is from experiences of IPRS providing identity services to multiple sectors; finance sector to the bank, revenue authority, consumer services e.g. MPESA, education sector to the Higher Education Loans Board, agriculture and lands sector in terms of property identify, deeds, etc, Revenue Authority, ports of entry, etc. How can the health sector too benefit? With strong measures around privacy and confidentiality, I believe the health sector can benefit immensely.

Thanks.

On Tue, Sep 13, 2016 at 6:23 PM, Derek Ritz (ecGroup) derek.ritz@ecgroupinc.com wrote:

Hi all.

UNICEF sponsored a set of 3 videos re: unique IDs for health, with a focus (as one might expect) on use cases specific to children. The 3rd of these videos goes into some detail about how CRs may be leveraged; it may be found here: https://vimeo.com/152392600. If folks are interested, the preceding videos 1 and 2 can be found here and here, respectively: https://vimeo.com/151342311, https://vimeo.com/156650602).

There are good reasons to want to have a health CR separate from the national ID database that may be managed by the ministry of the interior. One reason is that it can take a decade or more to achieve the inter-ministerial consensus needed for a single, all-government ID number to be operationalized. Rolling out a dedicated ID purely for health purposes is much simpler from a governance standpoint – and often much quicker to implement. As an additional motivation, for many of our most vulnerable populations, it will impede their care-seeking behaviour if they have to present their national ID number to get care. As Carl has mentioned – the unique privacy and confidentiality policies that apply to health data can encourage this care-seeking behaviour where a health-only ID is used. (This particular issue is discussed in video #2, above).

I hope this info might be helpful.

Warmest regards,

Derek.

PS: apologies… these videos will soon be posted up the AeHIN site, but they aren’t there, yet.

Derek Ritz, P.Eng., CPHIMS-CA

ecGroup Inc.

+1 (905) 515-0045

This communication is intended only for the party to whom it is addressed, and may contain information which is privileged or confidential. Any other delivery, distribution, copying or disclosure is strictly prohibited and is not a waiver of privilege or confidentiality.

From: ohie-implementers@googlegroups.com [mailto:ohie-implementers@googlegroups.com] On Behalf Of Darcy, Niamh
Sent: Friday, September 9, 2016 12:03 AM
To: Carl Fourie; Elaine Baker
Cc: OpenHIE Implementers Network (OHIN); Happy Mariki Danford; Sriyanjit Perera; Shaun Grannis; Mturi Elias (emturi@gmail.com)
Subject: RE: [ohie-implementers] Request for comments on client registry way forward document for Tanzania

Thanks Carl and Shawn,

Under 1, we do not have the answer yet. The concept note has a health sector client registry that can link to the National ID data systems as defined with specific Use Cases. eGA is leading the way on laws/policy reform as it relates to e-anything. The MOH HMIS is also looking at data policy (which would include data sharing/use) – but am not sure how far along this is.

There is a lot of discussion ongoing about how personal information is managed, and many different stakeholders involved.

I copied Mturi on this email, as he may know the status of some of the proposed new eGA laws that should address some of these areas, as he is co-leading the EA work in Tanzania.

Niamh

From: Carl Fourie [mailto:carl@jembi.org]
Sent: Wednesday, September 07, 2016 7:43 AM
To: Elaine Baker elaine.baker.work@gmail.com
Cc: OpenHIE Implementers Network (OHIN) ohie-implementers@googlegroups.com; Happy Mariki Danford shose6@gmail.com; Sriyanjit Perera iix6@cdc.gov; Darcy, Niamh ndarcy@rti.org; Shaun Grannis sgrannis@regenstrief.org
Subject: Re: [ohie-implementers] Request for comments on client registry way forward document for Tanzania

Hi Elaine

Thanks for posting this and calling out to Shaun to help bring in the Client Registry community too. I’d be excited to see comments coming in on the list (a way for others to grow too). A few questions that weren’t immediately clear to myself:

1 - under governance and policy it would be good to explore who carries the responsibility for curating the CR / MPI information.

2 - are there any regulatory or policy considerations around privacy that Tanzania has that one should be considering? I.e. in RSA we have Protection of Personal Information (POPI) Act and (paraphrasing) a person must be able to ask an institution what data they have about them and be able to have that data given to the requesting person. Are there privacy or constitutional concerns around how personal data is managed in Tz?

Cheers

Regards
Carl Fourie

Senior Program Manager | Digital Health Division

Jembi Health Systems | SOUTH AFRICA
Mobile: +27 71 540 4477 | Office: +27 21 701 0939 | Skype: carl.fourie17
E-mail: carl.fourie@jembi.org

Email Disclaimer:

This e-mail contains proprietary and confidential information some or all of which may be legally privileged. It is for the intended recipient only. If an addressing or transmission error has misdirected this e-mail, please notify the author by replying to this e-mail and then deleting same. If you are not the intended recipient you must not use, disclose, distribute, copy, print or rely on this e-mail. Jembi Health Systems NPO, its subsidiaries and associated companies is not liable for the security of information sent by e-mail and accepts no liability of whatsoever nature for any loss, damage or expense resulting, directly or indirectly, from the access of this e-mail or any attachments hereto.

On Wed, Sep 7, 2016 at 12:32 PM, Elaine Baker elaine.baker.work@gmail.com wrote:

Hello all

There is a task team working on a way forward for client registries in Tanzania, chaired jointly by Happy Mariki of MOH and Sri Perera of CDC (copied above), under the supervision of the enterprise architecture technical working group. A small working group has drafted the attached document. We are also planning on discussing it and working on it further with a wider group of stakeholders.

If anyone from this community would have time to submit comments or inputs on this they would be very welcome. This could come either in the form of particular comments written into MS word document, or overall comments in the text of an email. Am not sure if list owners want commentators to copy this list or not, but if anyone prefers to submit comments directly please send to the four email addresses (three email addresses copied above as well as mine).

Example questions - are there any key considerations we have left out, particularly in the governance/policy questions or in the key features of a client registry section? Are there particular international standards or international best practices we could mention specifically?

Thank you in advance for your time.

Best wishes

Elaine


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Regards,
~Steven Wanyee Macharia~

Regards,
~Steven Wanyee Macharia~

Elaine Baker
+255715568512